The Scottish Society for Rheumatology is committed to supporting research that reflects the needs and priorities of people with rheumatic diseases (like arthritis). Many people with arthritis from across Scotland are already involved in research projects – you can find out about some of them at the Scottish Collaborative Arthritis Research network site.
Volunteering to take part in a project
There may be a research project that is recruiting participants, and is suitable for you. Usually, your local rheumatology clinical team will let you know about research (but you can also ask them directly). Occasionally, there may be projects that you can volunteer for directly, and then we will list information and contact details below.
Scottish Health Research Register (SHARE)
SHARE is a partnership between the NHS, government and universities in Scotland to develop a research register of people living in Scotland who are interested in helping with medical research. Over 200,000 people have registered so far and this is growing each day. You can find out more here.
Patient and Public Involvement
In order to ensure that our research is relevant to patients, we appreciate help from patients, relatives and carers. There are several Patient & Public Involvement (PPI) groups in Scotland who are looking for volunteers to join them.
What do members of PPI groups do?
Members are enthusiastic individuals who engage with researchers to help in many ways. Each person’s involvement is based on their preference and can take many forms including: joining workshops, focus groups, or study teams; reviewing funding applications, designing information sheets and helping to share the results of research. Members can decide how much or how little they wish to get involved.
Where can I find out more about public involvement in research?
Further information about what is public involvement in research is available on the INVOLVE website
How can I get involved?
It does not matter where you live - even if you do not live close to any of the main research centres in Scotland, there are lots of things that you could help with from the comfort of your own home.
The Glasgow Arthritis Involvement Network (GAIN) works with researchers based in the University of Glasgow. If you would like more information on GAIN please contact:
Institute of Infection, Immunity and Inflammation
Sir Graeme Davies Building, 120 University Place
University of Glasgow G12 8TA
Telephone: 0141 330 5620
The Aberdeen Centre for Arthritis and Musculoskeletal Health (ACAMH) works closely with members of the public, patients, carers and individuals with lived experience of MSK conditions. Our programme of research is focused on rheumatic and musculoskeletal conditions. We have PPI groups set up as part of a number of our ongoing studies (https://www.abdn.ac.uk/iahs/research/epidemiology/research-107.php).
To find out more about getting involved click the following link: https://www.abdn.ac.uk/iahs/research/epidemiology/opportunities-154.php
Details to follow